Now it has been two years since I made the mistake of trusting doctors with a surgery that couldn't go wrong.
The nissen fundoplication was suppose to be a routine procedure with the highest risk was not being able to eat for a week.
Two years after, I think, was the reflux my hell or the esophagus spasms?
People always thinks what they are dealing with in the present is the hardest, and most painful one.
But if I would have one week of each disease, I don't know with one I would rather have..
The sick joke of life is that we always want want we cant get, and get what we don't want..
So is that was life is about, gods Sadomasochist ways of torturing us, with our vulnerable side??
I hope that others out there don't have to go through what I have too, I don't wish that on my greatest enemy, not that I have one, but no one deserve to be tortured with pain everyday. It changes you, and not for the better. You become more cynical, less understanding, and more self absorbed.
I wish I could say that I didn't, but when you have been through hell and back again, you don't understand the samll tings anymore. the little fights means nothing, and small problems seems a ways of time.
Hopefully it is just a temporary side effect of being sick. I miss the girl that cared more about others that herself, the girl that would drop everything if a friend was in pain, and the girl that laugh at least 10 times a day, sometimes I could laugh for hours...
As I have written before, many of my problems started with the Nissen Fundoplication. And until now this has been the only way to permanently relive Acid reflux (GERD).
But now The Linx™ anti-reflux treatment system has become available. There have begun a commercial launch in Europe. And the Linx™ has already been implanted in over 150 patients worldwide.
I think it about time that something else that hopefully will work better, and with fewer complications would come on the marked.
This is implanted with the use of laparoscopic, the same as Nissen Fundoplication. So I do hope that they will have less problems But in the world today, no matter how technological we have become, Surgery is still risky business. Torax Medical Inc. has received CE Mark certification for its LINX™ Anti-Reflux Treatment system.
Unfortunately is has only been approved as an investigational device in the United States.
But if this is a good solution, we can only hope that Linx™ soon will be approved there as well.
I look forward to follow The Linx™ and to see what this will do to relive the world of Acid reflux.
I had GERD (gastroesophageal reflux disease).
And as some of you know, my road started with the hope of living a more normal life, especially with a hope of a more normal diet and less pain.
And as Orison Swett Marden said:“There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow”. This is so true for everyone in the health care system.
I asked the doctor in advance. What could I expect. What was worst case scenario etc. I have always believed that when it comes to surgery, we in society today take it to lightly. And I do know that something can go wrong.
My doctor told me that I had a 1 % chance of something going wrong, and the worst case was that i Couldn't eat for a week.
Based on that I took the chance. And today with the laparoscopic procedure it is even a smaller chance of infection, and a faster recovery time.
And of course everything went wrong. I couldn't eat for 3 months. I was through lung surgery, and I was in the hospital for over 4 months.
When I came home we started to look through the internett. My doctor had never heard of esophagus spasms with nissen fundoplication. I Googled it one time, it took me 5 min to figure out that spasms can occur with nissen fundoplication.
I quote: "Our findings suggest that patients who undergo laparoscopic Nissen fundoplication for gastroesophageal reflux disease are at risk for the development of esophageal motility disorders, including
secondary achalasia and DES (esophageal spasms)."1.I think that says it all..
I quote again: "Other complications in this group included two intra-abdominal abscesses, one pleural effusion, one gastrocutaneous fistula, and one right vagus nerve injury."2.
What is the most disturbing to me. is that my doctors at my local hospital saw a density on my right lung over a month before I was put on a respirator, but they didn't do anything about it.
Even to this day, they try to pin this on the botox, even thought I had the botox twelve days after they saw the density on my right lung. I guess they don't want to own up to giving me a Pleural empyema, and almost killing me.
I think that in a country like Norway they should only do this procedure in one place. This because Nissen fundoplication is a complex procedure, and they requires advanced laparoscopic skills.
Again I quote: "complications are directly related to the surgeon’s experience level."3. At the hospital where I did it, they only did about ten operations a year. And that is to few!
All and all, I do understand that people out there want to get treated for GERD, and I do know that I am probably a very worst case scenario, and nobody wants to become that!
As I have written before my journey started with me getting Gastroesophageal reflux disease. (GERD)
I had gotten it because I had taken Votaren over to many years.First my doctor put me on Zantac(active substances: Ranitidin), but it didn't have any effect and on this point I had lost 8 kilo.
I got a gastroscopy and they could see that I had GERD. They put me on Somac (active substances: Pantoprazol) at first, but it had no effect so I switch over to Nexium (active substances: Esomeprazole) and i took 40 mg x 2 at night. It had some effect, but I had to stay on a strict diet for it to work.
So then I had a esophageal ph monitoring, which showed that I had GERD, and a manometry, who showed that I had inflammation in the esophagus, and that i would be a good candidate for the nissen fundoplication.
I was very happy to get rid of the proton pump inhibitors , and the strict diet, and on November the 9 i walked into the hospital, not knowing that what I was about to go through, would be far worse than what I had already been through. Sometimes the medication is the lesses evil!
