When you are sick the hardest part is loneliness.You think that no one understands and that you basically are left alone to die like a sick animal. But then you hear that there is a place you can turn to for help and guidance.
And when you reach out to this organization for help, because their motto is: We are here for you. And all you get is a small e-mail with the basic of esophageal spasms.
Nothing like: we will help you, and we will have a meeting for people in you're situation. Now you don't have to be scared anymore because we are here for you! They do cover digestive disses, but they're main focus in Crohn's and Ulcerative colitis.What about the rest of us? We need help too!Now I will have to figure out everything on my own. And thats not easy when you have 6 ½ bad days.
it is not easy. it should have been more organization,you have a disease that one can not so much about, but think that the help you give others with your blog, and we who read the blog to follow you so you're not alone.
ReplyDeleteyou're a tough girl
You are not alone, all of us who write on your blog is close on your side. We will all help you, we are your freind.
ReplyDeleteYou are not alone..
Thanks for the warm comments. I never thought of it like that, but I like that You who write are on my side, and that you who follows it are therefore on my side :)
ReplyDeleteI don't feel all that alone, when I think of it like that
hugs