Who in the gods name would want to have a painful chronically disease for the rest of their life?? Who cares if it is rare or common??Its not a competition. Sick is sick, and it is as devastation to everyone who are forced down that road.
We have all dreams, hopes, goals, and seeking happiness.
I remember when I was in the hospital and had to take all this different pills to see how effective they were, the only problem was that the spasms were so severe that I had to get a double dosage of morphine afterwards.. How can you clinically say that that medicine didn't work?? It was just the wrong consistency of the product. SO I don't understand why they are so reluctant to try those medicines again, we just have to find the right way to take them without irritating the esophagus.
When I am lying here writing, this one thing hits me: every treatment, medicines etc I have been through the last year and a half, is a result of what me and my boyfriend have come up with.
And none of us have any medical background. How can we know more then the specialists at our National University Hospital???
I would be so humiliated and embarrassed if I couldn't find one treatment for my patient!!! Why have a health care system if you have to self diagnose yourself?? Doesn't that defeat the purpose?
My lung specialist said something to me last time that have been churning around in my head : The health system have stopped treating the patients with respect and dignity.
When you are sick, you are scared, alone, and I think we all can agree that all we want to be met with is some compassion... It is amazing how much we humans are willing to forgive if we just feel like our voice have been heard.
Us little guys in the big wheel of society just want to be seen heard and treated with kindness.
But maybe thats why we are loosing that because we only communicate with each other over the internett. But then again, for someone like me, the internett is what makes me feel like I am at least a small part of society.
But If I could have meet those of you that read my little blog, maybe we would have been an open, honest, non judging group that would have been like paying it forward. The only problem is that its not so easy getting together people from all the continents.. But rewards only feels like that if you have to fight for it... What are you standing up fighting for today???
Me, I am doing th laundry.................
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