Friday, August 31, 2012

0 NPE A JOKE.........

NPE is a joke in my eyes this time.
The doctor who operated on me the first time he gave me 50%  medical disability here in March, that I didn't  accepted.
He could say that he thought I was 50% disabled before I was operated, even though it was just covering his own ass. while he did not follow the table when he sat my disability at 50% .

Now another specialist  have come with a new assessment of 100% medical disability, but it seemed that NPE think this is too high, and that since he follow the table when he sat the disability. The NPE made him adjust the % down to 70.

What's the use of specialist declarations if the NPE determines % anyway? And why do they accept a non table, assessment but not another? Aren't the NPE there to protect the patient?
I feel they are there to save the state money and lawsuits.

I'm glad I have an attorney who refuses to give up and give in!he was up late last night and, help me and give NPE hell. But I can safely say that has in no way improved my confidence in the system. Quite the contrary.
Why have a system if the poor, small people gets screwed??

Monday, August 20, 2012

0 Here I am/Who are you/Who are we going to be??

“The secret to being wrong isn't to avoid being wrong! The secret is being willing to be wrong. The secret is realizing that wrong isn't fatal.”
 ― Seth Godin

I have been yelled at on the train for not letting "sick" people sit down, I have been cursed at because I said I couldn't help with lifting the stroller of the train.
Why have we lost the ability to think good of others?? Are we that self centered that we only see foes around us?? Are we all the devils children??

Where is normal courtesy? helpfulness? a smile?
When technology becomes our support network, our friends, family, relax time, and  a boy/girl friend, what do we lose? Is technology the best thing that have happened??

What about kids? can children get bored today? have they ever needed to entertain them selfs for an hour? Or do they immediately go for the I Pad.. Isn't that scary that kids know how to use a I Pad before they can talk??
I have heard so many parents have this thought about raising children, but when they get them, they do everything they said they would never do.. But thats ok. We cant do it all, be everything.
I read this article where parents and scientists are more concerned about the internett than drugs and sex.
That says everything.... Yes I blog, I have Facebook, Twitter(don't use it though), e-mail, shopping, skyping and knowledge..
But I try to keep it on the down side.
45 min to reading the news, 10 min on facebook, 2 min checking my mail, and 30 min on my blog everyday. I don't think thats to much. It should be a tool for knowledge and comfort, not addiction.
But where do we draw the line of addiction?? Here is a test you can take to see if you are addicted.
Is seems to be more about how you are acting than about how much you time you use in front of it.

“The price of greatness is responsibility.”-Winston Churchill
We need to make the world a good place to live.
My blog has been about illnesses, understandably, But also about hope, the future, how to get a dignified life.. How to get society to take care of each other. back each other. Be Proud of one another.
If  our truth is what the media is telling us, we will loose what the world is like, and that will be a grey-black dreadful world to live in....

Wednesday, August 1, 2012

0 Qutenza®

 I am in a research project that they will use Qutenza®  that is a patch to be used against nerve pain.
They will use it on my lung scar since that is so painful. The project haven't started yet, but I hope it will show some promise. And  give me some relief that I have longed after for so long. I don't expect it to make my situation good, but if the nerve pain from the scar and in my chest after the lung surgery can be relived with Qutenza®, then I am all for it.
Like I have said before, try everything twice, leave no rock unturned...

Qutenzas main active ingredient is capsaicin which is the active component of chili peppers that gives them their heat sensation.
It is also the  first and only pure, concentrated, synthetic capsaicin prescription drug.
Capsaicin initial effect is the activation of TRPV1-expressing cutaneous nociceptors, which causes stinging and erythema due to release of vasoactive neuropeptides. After capsaicin exposure are cutaneous nociceptors less sensitive to a variety of stimuli. These effects of capsaicin, which occurs at a later stage, often called desensitization and is believed to be underlying the pain relief.
Other sensations such as heat sensitivity are not affected
Qutenza has been shown to be effective used alone and in combination with systemic drugs for neuropathic pain. Pain reduction is seen in clinical trials as early as week 1, and persists in the 12-week study period!

 Qutenza® (capsaicin) should be placed on the intact, undamaged skin by a physician or under the supervision of a physician.(use max. 4 patches per time). The patch will remain on the skin for only 30-60 minutes. Initially the capsaicin empty cells for neurotransmitters that transmit burning pain. This can lead to local irritation, burning / stinging pain after the patch is placed on the skin area to be treated. This area should be treated with local anesthetic cream (lidocaine) to mitigate this reaction before capsaicin patch can be applied.
The first few days after the treatment, the treated area may be sensitive to heat, so avoid hot showers or baths, direct sunlight, and exercising. For persistent or recurrent pain, a new patch is put on every 3 months.

Commonly reported side effects are local transient burning, pain, erythema and itching at the attachment site. The side effects are transient, self-limiting and usually mild to moderate intensity.
Very common (> 1/10): other: pain and erythema application site.
Common (≥ 1/100 to <1/10): other: itching, papules, vesicles, edema, swelling and dryness of application site .
Uncommon (≥ 1/1000 to <1/100): gastrointestinal: nausea. Heart / man: first degree AV block, tachycardia, palpitations. Skin: itching. Hypertension. Infections: Herpes zoster.
Respiratory: cough, throat irritation. Musculoskeletal system: pain in the extremities, muscle spasms.
Nervous system: dysgeusia, hypoesthesia, burning. Investigations: elevated blood pressure. Eye: eye irritation. Rare: urticaria, paresthesias, dermatitis, hyperaesthesia, inflammation, reaction, irritation and bruising  application site. Peripheral edema.

The good thing about living in this socialistic country is that I will get this treatment for free. One patch costs 428.717$, so if I had needed 4 patches each time that would have cost me 1714.86 $ every quarter.
The more time I deal with my situation the more strongly I belive that free health care is a human right, and not for the blessed few who can afford to bye they're health!