Thursday, November 29, 2012

0 2 YEARS...

This is where my blog saw the day of life, in bed in a hospital where no doctors had any idea have to fix me. It was the first picture that was taken for what was to become Life with dignity!!!
Even though I am in hell I feel blessed.
This blogg has been a platform for my rage, sadness, fight and resignation for my illness.
I have been able to do research on this subjects and share them, hopefully to someone who has needed it.

My love and tanks go out to those who have followed me, given me hope in hopeless situations, and my 1 goal for this blogg was to reach out to sick fellows and If my pain could help at least one then it would have all been worth it. And I have, so my goal has been reach.
So what will be my next goal??
I was afraid of my honest forthright that some would not like what I had to say, but the truth hearths sometimes even if we don't intend to.
By trying to help others I have helped myself, and I must say thats have surprised me. I think so much about others that even in my darkest hour I would rather help someone else than me.
But doing what comes natural to me, I have given myself the biggest gift : HOPE.
Hope that I might find a weird way to coexists with me many illnesses. A way to have a meaningful life in all tha chaos. To make a difference.
Working for the red cross gave me more than I think I gave them, somethings in this world cant really be bought with money:LIFE EXPERIENCE.
Life experience has made me a young/old women. to much baggage in th wrong place. But we got to work with what we got eh???

So thank you for giving me the strength to write this blogg in my best days,my worst days and all in between.
I have learned so much about humanity, patience, care, compassion and empathy..
My hell has also been a salvation, finding a road in the pitch black dark. would I be me without the worst ting that has happened to me?? I am my biggest obstacle, but also my strongest card.
To use my weaknesses for good and don't let my humanity get the best of me, bur use it to get me out of hell.

I hope my blogg will keep on for years to come, It has become my road map in and out of this hell, and I hope it will be for years to come, This is a lifelong journey, and not just a slope outside the road.
The slope off the road is my way now, it is a little more rural and difficult to navigate, but I have hope that one bumpy road is better than no road!! So I hope you will keep following my slope road into the future

Monday, November 26, 2012

0 Survival of the sick Vs. the healthy

Why is it that when something bad happens people need to sweep it under the rug?
No one wants to be around sick people to long, its like we are making the environment toxic.
People like you to talk about you're illness to begin with, I think that has more to do with curiosity, we like to be in the loop..
But if there aren't any progress people want to forget how fragile life is, how you one day can be healthy, and happy and the next day, seize to exists.

I feel people are starting to forget that I am sick, it feels like their faces are saying: like deal with it, don't talk about it, and if you try really hard maybe you will just forget that you are sick. I have!
I have never read an article in a magazine with a person who are

Wednesday, November 21, 2012

1 Maintain the rights of patients, not just for the doctors!

I have felt like a helpless person in my fight against "the system".
I say the doctors aren't the problem they are the symptom. The problem is higher up. they let the doctor do what they want without repercussions. And the patient isn't the main focus anymore!

Did you know than when a doctor wrongfully treats a patient, they will always consult with a lawyer and their trade union so they find a medical formulation so that the doctor will not be held accountable?
It is a type of camaraderie between doctors, the health care and the different public offices in Norway.
In 70% of cases the public offices win, does that ensure the patient rights?
In addition, wrongful treated patients is not recommended to get a lawyer

Sunday, November 18, 2012

0 Discontinue of pain medication....


I have lived on a double-edged sword for a long time. hoping that someone/anyone would hear me cry for a better life. But I am not being heard.
My pain doctor at the university hospital says one thing at my consultation and end up writing another for the medical history.

They have now backed down on every promise they have maid. No qutenza, different medication, 2-opinion, acupuncture, and now discontinue of pain medication!
They have said they will only keep my as a patient, if I do everything they ask.
And they know what they are asking, I will not be able to do. How f&#¤et up is that?? Making me the bad guy, the quitter so they can have clean hands and a clean "conscience".
So the 22 of November they are starting to discontinued pain patch over a period...
My doctor said: It will hurt like crazy for up to 10 years

Monday, November 12, 2012


I know, the 1 rule of getting a lot of readers on you're blog is to be happy, enthusiastic and positive.
I don't have that many happy days, and cheerfulness over  a new lip gloss or the new fall line as the pink bloggers.
I dont post 3 notes a day, and when I write I want it to mean something, feel my emotions with me.
Me, my life has been pretty dark this last few years, but to have this blog has been a savior, because i can let it all out, raw, damaged, painful and sometime a good day...
My mission in starting this blog was that I wanted to reach