Tuesday, December 7, 2010

4 were are we going

Today i finally got an appointment to the Pain clinic on the 14 of December, and I am hoping with every bone in my body that they will find a way to make my pain less, so I can live a little more. I am starting to get tired of this couch. and I wanna decorate the house for Christmas, and eat without fear.

To have a disease that makes you scream by just swallowing food, liquids, and my own saliva. do I have to be scared to eat for the rest of my life? And I never know when the esophagus spasms are coming. sometimes I don't even have to eat anything.
what I would like is to talk to others that are in the same situation, and what has helped for them, or if they are in my position: maybe we could help each other. There has to be something out there that can help, but where? even if you don't have spasms but have found some coping techniques for living with chronic diseases?
Its not easy reading articles from different countries with Google translator... it's not always precise.


  1. Take a look at healingwell.com, there are many people there with your condition: http://www.google.com/search?aq=f&sourceid=chrome&ie=UTF-8&q=forum+espharagus+spasms#sclient=psy&hl=en&q=+site:healingwell.com+esophagus+spasms&aq=f&aqi=&aql=&oq=&gs_rfai=&pbx=1&fp=31daead6c6fa609b

  2. thank you so much. i have joined the website and it is nice to see that i am not alone in the world, even though i feel lonely i Norway.
    big christmas hugs from me to you :)

  3. Please Alexandra, wait for me to catch up to present date. 04-04-12. We have so much in common. Even though we have horrible chronic daily pains and fears, our positive attitudes makes us fight another day and grow stronger mentally. HUGS

  4. I will wait. just give me a hallo when you get there :)
    I will be waiting on the other side ;)
    hugs Alex